National Organization for Rare

The National Organization for Rare Disorders, Inc. has prepared a Web site that provides, at no charge, lists of associations organized by health topic. You can access this database at the following Web site http//www.rarediseases.or search/orgsearch.html. Type isobutyryl-CoA dehydrogenase deficiency (or a synonym) into the search box, and click Submit Query. 

National Organization for Rare Disorders (NORD) http //www.rarediseases.orjy... 

The Orphan Drug Act of 1983, which amended the 1938 Federal Food, Drug, and Cosmetic Act, provides incentives for the development of drugs for treatment of diseases affecting fewer than 200,000 patients in the USA. The FDA maintains an office of Orphan Product Development to provide special assistance and grants to scientists with an interest in these products. Information on orphan drugs is also available from The National Organization for Rare Disorders. 

Meyers, A. S., Executive Director, National Organization for Rare Disorders, Inc., New Fairfield, CT, personal communication, August 31,1992. 

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